Every year I sit at my computer, and try to think of a way to plea for your donations and support for a cause that hits very close to my heart, because she is my heart.
It's all about a now, 8 year old little girl who has the heart of gold. So do I tell you the story of her diagnoses? Do I talk about the terrible side effects of living with diabetes? Do I tell you about her crying in the car saying she doesn't want to be different? Or do I talk about the hope of a mother wanting a better tomorrow for her daughter?
Many of you know me, you know my Presley and you know her story, but for those of you who don't, let me share. July 25th 2007 was a normal morning in our house, normal with the exception of the test I was taking my 18 month old daughter in to have done at 9:00 that morning. I pondered about how silly I felt to be having her tested for diabetes. I mean, Diabetes? But with her increase in drinking, her excessive urination, and her happy smiley personality changing to a sleepy, sad girl, I thought "better safe than sorry" Sitting in the waiting room, holding my lethargic... sick, sick girl, I still thought I was being ridiculous. The moment I knew, that moment the nurses face changed from certainty everything was fine, to knowing it no longer was... is a moment that makes me cry today. I didn't understand, it was a take your breath away moment. I took in a deep breath and I just sat there, I held it, unable to release, because I knew once I did, I would fall apart, and if I fell apart, it was real.
I remember the weeks and months following her diagnoses, people not quite being sure what to say. They would try to be positive, and encouraging, but often times it came across as belittling and dismissive of the seriousness of the diagnoses she was given. I remember people being positive and saying "Oh she'll be fine... medicine has come so far, she'll be fine.. you got this" I remember giving a smirky smile, raising my eye brows and often times walking away. It's true, medicine has come a long way, but she's still more likely than you and myself to endure all the awful side effects that come with living with diabetes.... and for so long. I remember people saying to me "well it could be worse... she could have..." I knew people were trying to make me feel better, but guess what? I didn't want to feel better. I wanted to be mad, I wanted to be angry, and I wanted to be sad for my little girl who was now getting upwards of 3 shots a day, and who had taken to sleeping on her hands to avoid getting checked while dreaming. Because it's true, things could be worse, but you know what... they could be a hell of a lot better too.
I remember the first time we had to call 911 because after kissing her goodnight and tucking her into bed, her BG dropped dangerously low and she began to have a seizer. I remember running to her, her tiny body shaking, her screaming.... that scream. The scream of terror, she was so scared, her eyes were open, but she wasn't there. She cried out for her daddy, she turned her head as if she was looking for him all while her tiny body shook uncontrollably. I remember the call, I remember the sound of the sirens coming down the street. Hearing them, and knowing they were coming for us, coming for her. It's another take your breath away moment.
I don't think anybody can truly know what it feels like to have your child be diagnosed with such a life altering, and life THREATENING disease if you haven't lived it. I can't say to you "Try to imagine" because trust me, you can't. Even if you know her, and love her, you can't understand how utterly heartbreaking it is as her mother. As a mother we want two things for our babies, to be Happy.. and Healthy. If you ask any mother what she wishes for her child.. Happy, and Healthy will be her answer. If I could bear the burden of this for her forever, I would.
Don't get me wrong, our life isn't a dark cloud hanging over our heads dripping sad diabetes blood drops. Diabetes is hard, it's hard for her, it's hard on those who truly love her. Of course I hope to make everyone who reads this, truly understand how difficult, and heartbreaking diabetes is. How helpless you feel as a parent not being able to take away the hurt and heartache your child feels. BUT through this all, she is an amazingly loving, and compassionate little girl. Our lives have taken on a new normal. One that revolves around numbers. It includes, finger pokes, insulin injections, pump site changes and a lot of careful planning and decision making.
We started fundraising for the American Diabetes Association after Presley's first diabetes camp. It was the first time she was free from me being her nurse. She was around other kids like her, she wasn't the ONE in a room checking her blood but one of many, she blended in, she felt.... normal. After camp and after the assistance the American Diabetes Association gave us while getting ready to send Presley to school I knew that they had won my heart as a mommy who didn't just want a cure for my daughter, but wanted a better today for her as well. I've talked about hope, and as a mother I hope many things for my girls. Happy and Healthy... remember? I hope for a better tomorrow for Presley, I hope a cure is found so that at the very least it will help stop this disease from happening to another child, but we can't live on hope. SO we have to live in the now, and in the today and now Presley needs Camp, she needs a place to go where she can feel normal. Where she is safe with other children like her. She needs to be safe at school, and she needs to be reminded that there is an organization out there fighting for her, and others like her. It's because of the today and now, AND my hope as a mother for her future that we are so very passionate about the American Diabetes Association. If I could get on my knees and beg.. I would. But I can't, all I can do is try to write a letter, with sweet pictures of my daughter who's been living with a disease for far to long, since she was a baby and hope it moves you to action.
Have you been moved into action?? If so, you may wonder how you can help. There are THREE ways you can help
2. Want to do more than donate, want to JOIN us in our efforts to fundraise and raise awareness? You can take your donation and make it grow by telling YOUR friends and family about Presley, and have them donate to her team. Join our team and raise awareness!
So I must write a quick thought about Super bowl, now that little funny clip art is about me. I could care less about football, any sport really. Super Bowl is a good excuse to eat bad food, and see some funny commercials.
I wasn't a big fan of the car Commercials. They were all so........ deep, BUT this one.
The half time show was my FAVORITE so far. I Love Bruno Mars he is such a good entertainer, I love his smooth moves, his sexy voice, and well... he's not so bad to look at. I'm not a huge fan of the Red Hot Chili Peppers BUT.... I didn't hate the song they sang. I wouldn't have minded it being Bruno the whole time, BUT.. I still LOVED IT! If you haven't seen it, click on that link.
Then I found this, and oh it made me laugh. DONT be offended major Bronco fans. See the funny in it. I can year the old man in my head...."Gotcha a dollar!" plus it's not even true... they didn't almost have it.
I tend to save pictures, funny quotes, funny ecards, or other miscellaneous stuff till have a several to throw all into one blog. So here's my current hoardings.
HA! I love Anchorman
For all you Mr.Grey fans... I saw this advertisement, I guess it's the first released poster thing for the move. (Like my technical term... Poster Thing)
This picture makes me uncomfortable
Do you know how lucky I am to live here? I'm not one for the beach, I hate the sand amongst other things about it BUT I love that I can go with Tyler on a Tuesday afternoon for a walk and lunch with this as my backdrop.
These guys got a deal on Shark Tank but didn't quite plan on a high five or fist bump. I call this
The other day I was mixing patterns... these were the patterns I was going to rock...
Eh?.. Eh?... I think it worked.. I loved it!
Grace made this Panda out of loom bands. I was so impressed, totally cute.
On a Sunday drive Tyler the girls and I took, I noticed this creepy manikin looking out of a window. EW
I can't have random picture blog without one of my Cash
Presley's newest Monster High is my favorite because of her hair! I love that hair!
This is Honey Swamp you can buy her at Target HERE
I got a new bow... I think I like this color on me.
Presley running at the VW night at Sonic. I love this picture by the way
On the way home from bowling with the girl scouts we saw this car.. notice his creepy backseat passengers.
If it zips it fits.. HAHAHAHA, so his is funny. But not true. Just because it zips doesn't mean it fits. Look in a mirror before leaving your home.
HA! This may seem so ridiculous that nobody would ever actually explain color this way, but it's not. People do. People bug.
Aint this the truth.
I LOOOOOVE this! If you know me, you know I LOVE Wicked.. it's my FAVORITE! and my new favorite Disney Cartoon is Frozen, I LOVE Idina Menzel, so I love this. Best of both words.
On one of our shopping extravaganzas Tyler and I came across this. Chubby soda. The perfect drink for Chubby kids everywhere!
Have you EVER seen a motor home with a guest house?? I have, and now thanks to me, you have too. This bad boy takes turns in the Wal-Mart parking lot, and another one down the street.
I don't remember if I already posted pictures of this. But I had Tyler put this frame up so I could frame some frames. He hated me while he did it. BUT when it was all said and done, I think he could appreciate how awesome it is.
Reason 5,650 why diabetes sucks.
Pump wires getting tangled with Wii wires
For Christmas Tyer had a crafty idea to make this Tire wreath for some friends of ours.
I think it turned out pretty cute, but we'll see if it's hung up next year
This past weekend I attended my first AND LAST Cat show. A friend of mine mentioned it was happening and I thought "huh... I've never been to a cat show" It was one of those things that seemed so ridiculously nerdy I couldn't pass it up. Tyler decided he wanted to go, so after he got home from going to the swap meat with a friend we headed out. (That last sentence made it sound like I was leisurely waiting for Ty to come home. I wasn't, he took forever, and I grew really impatient, so it actually ended with a lot of tension and anger HAHAHA!) Once we got into the cat show, we were hit by the smell of cats. So it was a little stinky. There were HUNDREDS of "cat" people walking around, and you know there is a stereotype you think of when thinking of "Cat" people, and well... there is a reason for that stereotype. A lot of lonely looking ladies, or librarians shuffling around with their furry friend. I will tell you several of them made me really nervous, because you could tell they were REALLY into their cat, it made you nervous to even take the cats picture because I was afraid I would get yelled at.
Cat judging area
I had never seen a Sphinx cat before so this was a bit of a treat. The owner let me touch her and it felt weird. I always thought I would like owning a Sphinx but I wouldn't.
That's a sea of crazy cat people. They even had cage judging. I don't think you can see but the bottom right cage has a mini chandelier
This guy was my FAVORITE!!!! look at that face... TO CUTE!!!
His owner let the girls play and pet him, he was so sweet.
THIS lady.... oh she was a CRAAAAZY cat lady. This lil guy was eating so she put his head through a paper towel so his fur wouldn't get dirty. He kept twitching as he looked around to try to see what the hell was around his neck... he certainly didn't seem to appreciate this bib
The two top pictures were kitties that were for sale, and I will tell you, they were pretty darn cute. The bottom right picture was an interesting looking kitty, his fur looked wavy. I was talking to a women who was next to his cage and was talking to other people about him, and I asked if he was hers "No, he's my best friends.... she is mine" and she pointed to a white Persian. You could tell she was annoyed that people weren't asking about her cat. So I said "Oh she's beautiful... is maintaining her fur time consuming?" she said "Yes... her pre show bath take 2.5 hours" hahahaha oooookay.
AND you wouldn't believe it... but we say GRUMPY CATS BROTHER!!!!!
Ok not really... but common... doesn't he look like grumpy cat, this lady is probably thinking
"shit.. why isn't my cat making me millions with his grumpy face?"